Motor Neurone Disease Association has hosted its event marking Global MND Awareness Day 2023. Within the United Kingdom, MND has affected more than 5,000 adults; Motor Neurone Disease is a fatal, rapidly advancing neurological condition.
Support is needed for research within the field of MND. It is possible thanks to the Motor Neurone Disease Association’s efforts in funding research, improving care access, and being a campaigner for all those who are affected in England, Wales, and Northern Ireland.
Global Awareness Day 2023 wishes to highlight the daily issues that many living with MND face daily. For more information on how to help support research for MND within our constituency branch, use the following link: http://www.mnd-notts.org.uk/
According to the Department of Health and Social Care, their newly announced funding next phase includes:
· £8 million for early phase clinical research for MND, speeding up innovative new treatments for patients through the National Institute for Health and Care Research (NIHR) Biomedical Research Centres. Today we have announced that, subject to contracts being signed, the Universities of Sheffield and Oxford will lead a collaboration with ten other centres working on early-phase clinical research for MND, seeking to speed up innovative new treatments for patients.
· £12.5 million to support the best MND discovery science at the UK Dementia Research Institute, recognising the fact that the underlying mechanisms of MND are shared with frontal temporal lobe dementia, presenting new possibilities for targeted drug development.
· £6 million from MRC and NIHR to join up these investments with other relevant programmes such as the MND collaborative and the UK Dementias Platform, to turn research into treatment available to patients faster.
· £1 million of government funding, which was allocated in June 2022, to enhance co-ordination of UK MND research by setting up an MND Collaborative Partnership, bringing together people living with MND, charities and researchers across the UK to discover meaningful treatments. This is co-funded by the medical research charity LifeArc and MND patient charities MND Association, My Name’5 Doddie Foundation and MND Scotland.
· £2 million additional investment in this MND Collaborative Partnership to focus on gathering and analysing existing data on the condition to explore the underlying causes of MND and help develop breakthrough new treatments.
